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Adela Perolla

Hospital Centre “Mother Teresa”, Service of Hematology, Albania

Presentation Title:

Financial toxicity in hematology: The unseen burden and the path forward

Abstract

In our ongoing endeavor to understand and combat hematological disorders, a significant aspect often goes under-discussed: the weighty financial burden faced by patients. Despite extensive research and medical advancements, the financial hardship associated with these conditions continues to present an unmet need within our specialty.
 
Direct medical costs associated with hematological disorders such as leukemia, lymphoma, and myeloma can be staggering. These expenses can encompass specialist consultations, exhaustive diagnostic procedures, hospital stays, and costly treatments like chemotherapy, immunotherapy, and targeted therapies (Gordon et al., 2017). For patients without extensive health insurance coverage or those living in regions without universal healthcare, these costs can be overwhelming. However, even insured patients often confront substantial out-of-pocket expenses due to copayments, deductibles, and limitations in coverage (Zafar et al., 2013).
 
Yet, medical costs represent only one facet of the problem. Indirect costs related to loss of income, need for professional assistance, frequent travel for medical appointments, and adjustments in dietary needs can significantly increase the financial strain on patients and their families (American Society of Hematology, 2021). Cumulatively, these burdens lead to 'financial toxicity' – the distress caused by high medical and living costs, which has been shown to negatively impact patients' mental health and overall quality of life (Fenn et al., 2014). As medical professionals, it is incumbent upon us to address this issue, extending our care beyond the physical to encompass the financial wellbeing of our patients.

To do this, we need to advocate for policy reforms to reduce out-of-pocket expenses, expand coverage for innovative treatments, and improve access to disability benefits. Building robust support networks to aid patients in navigating the complex world of insurance and financial planning is also crucial (Ramsey et al., 2016). The financial burdens associated with hematological disorders are substantial and warrant immediate attention. They are not mere side issues but significant obstacles that can affect treatment adherence, mental wellbeing, and patient outcomes. This growing crisis should not be the patients' burden alone. As a medical community, we need to broaden our focus to include the economic implications of their diagnosis.

Future research must prioritize understanding the economic impact of hematological disorders and the effectiveness of potential mitigating strategies. By doing so, we can develop a more holistic approach to patient care – one that extends beyond the biological and therapeutic aspects of these diseases. This shift requires a collective effort from researchers, clinicians, policymakers, and patient advocates. In the end, our ultimate goal is to improve the quality of life for our patients. By addressing financial toxicity, we will be making significant strides towards this goal.

Biography

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